The Delirium UK James Lind Priority Setting Partnership

We need to do more research to help people with delirium in the best way. In our survey we will ask people across the UK where research should focus.

Your ideas will help to improve the care of people with delirium.

This Partnership brings together:

• People who have experienced delirium
• People who have cared for a family member or friend with delirium, or are close to someone with delirium ​
• Health and social care professionals who have cared for someone who has experienced delirium, or who care for individuals who are at risk, or are worried about experiencing delirium​

They are working as a team to find out what questions about delirium are most important to answer through research.

 

Delirium is:

An illness that makes people feel very confused. It can start quickly, in just a few hours or days. It is usually caused by an illness, accident or surgery.

A wide range of people can get delirium, and it can happen anywhere—at home, in a care home, or in hospital. Delirium can make it hard to remember things and changes people’s behaviour. People may see or hear things that are not there and become very frightened and distressed.

When the underlying cause of the delirium gets better, delirium often goes away too, but sometimes it can last longer.

If you’d like to know more, here’s a video that explains about this illness.

 

Why is this study important?

When we know what people think is most important about delirium, we can focus research efforts to make meaningful improvements in the future.

Who should take part in the short survey:

• People who have experienced or people who are at risk, or worried about of experiencing delirium​
• People who have cared for a family member or friend with delirium, or who is at risk, or worried about experiencing delirium ​
• Health and social care professionals who have cared for someone who has experienced delirium, or who is at risk, or worried about experiencing delirium​
• You must live in the UK and over 18 years old to take part.

The survey closes on 3rd of April and we are seeking support to ensure as many voices as possible are heard and responses remain confidential.

 

 

Who is supporting this study?

This priority setting partnership is funded by the Academic Centre for Healthy Ageing (ACHA) which is a collaborative project between Barts Health NHS Trust, Queen Mary University of London and Barts Charity  and supported by the NIHR Greater Manchester Applied Research Collaboration and the James Lind Alliance is a non-profit initiative based in England, hosted by the National Institute for Health and Care research (NIHR). Here is a video which explains more about the James Lind Alliance Process.

Who can I contact for more information?

This priority setting partnership is led by Professor Elizabeth Sampson, and Professor Emma Vardy.

If you would like further information, or would like a paper copy of the survey, please contact:

FAO Dr Alexandra Feast, a.feast@qmul.ac.uk,  Academic Centre for Healthy Ageing, First Floor, Junction 2, Whipps Cross Hospital, Whipps Cross Road, Leytonstone. London, E11 1NR